I see your 46 chromosomes, and raise you one.

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New Bean, who dis?

October is Down Syndrome Awareness  Month. I’ve been reading many of the ‘Gram posts from DS mommies whose stories are almost identical to mine: errant/concerning pr-screens during pregnancy, amnios to confirm a DS diagnosis, a push to terminate the pregnancy.

Amniocentesis is worrisome because it comes with a risk of miscarriage, but now there is a far less invasive test to confirm Down Syndrome and other chromosomal abnormalities – a simple blood test that makes it easier to diagnose.

According to some stats, a positive pre-natal diagnosis results in termination something like 92 per cent of the time. Continue reading

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no need to apologize.

no-need-to-apologizeDon’t feel sorry for me; I’m happier than I’ve ever been.

A few months back I was wrapping up a meeting with a potential client, when the topic of children came up. I mentioned the blog and its title (“clever,” she said) and how it became even more apt when I learned of Aisha’s Down Syndrome diagnosis.

Her brow furrowed in concern and she reached out to touch my arm.

“Oh, your daughter has Down’s? I’m so sorry…” Continue reading

don’t bother trying to find her, she’s not (t)hair*.

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The last shot of 2015; me with long hair. (*and with apologies to The Zombies…)

I’ve been contemplating doing a hair post for some time, as I’ve been getting a lot of questions and compliments over the past year about my waist-long locks – mainly about maintenance (do them myself), and how long I’ve had them (just over six years), or what I put in them (nothing). As my hair grew longer, the response was almost exclusively enthusiastic, while my own feelings about it were increasingly less-than.

And so, on Tuesday night, while I sat in front of my laptop, dreading (ha) the idea of washing 19 inches of locks (and spending the next 19 hours indoors as they dried), I decided that I’d simply had enough; I grabbed a pair of scissors and headed to the bathroom. I stood in front of the mirror, examining my hair and scalp beneath each lock, and asked myself if I really wanted to Continue reading

what is she?

What is she? Cute as a button, that’s what!

When we’re oot ‘n’ aboot, my daughter’s appearance garners many inquisitive stares. Because of her fair complexion and silken hair, passersby sometimes try to discern without asking outright if there’s a  familial connection. Aisha has inherited my prominent forehead and mischievous expressions, so more often than not, they realize that she’s mine. And since it’s pretty obvious that she is of mixed race, people often really want to know which one(s).

It’s because of her eyes.

Continue reading

she’s a ten.

happy girl copyShe’s my star.

My little-big bean turned ten months about a week before Christmas and for some reason it was very emotional for me.

She is becoming very active now, rolling and army-crawling about to get to where and what she wants. I always knew she’d grow to be a stubborn little thing, and damned if the child hasn’t proved me right thus far. But she is also extremely loving and charming, ever-ready with a smile (any opportunity to show off her new teeth), and she makes me laugh-out-loud guffaw at least a couple times a day.

Parents of children with Down Syndrome are all too familiar with The List Of Things Your Child Won’t Ever Do, and for the most part, I’ve managed to ignore the naysayers and let the girl develop as she may, with a little help from her DT Patti and OT Amanda. Continue reading

hurried holiday greetings.

WP_20141226_004 1These two cuties would like to wish you a Merry Christmas, and Happy New Year!

Hey y’all!

I know..I’ve been away from the blog for a bit – what else is new? But this time, with good reason…I’ve started freelancing full-time. So on top of being a full-time stay-at-home mummy, I’m also a full-time writer, and gat dayum if this shit doesn’t take up all my free hours…but more on that another time.

I just wanted to pop online to wish all of you a Merry – albeit belated – Christmas, or however you choose to celebrate (or not). I did not go overboard for Aisha’s first holiday ho-down…I’m just too practical for that sort of thing. What’s the point in lavishing her with tons of gifts when I know she’d much rather play with the paper (which is exactly what she did)?

(I did get her a total of three gifts, all adorable, and only because I had unused gift cards left over from my baby shower. The funny thing is, with all the bustle of the big day, I plumb forgot to give them to her until the night was almost over. Bad mommy.)

With that said, I hope to give proper updates in the coming days…I’ve a bit of time off from the drudgery working before it all starts up again in the New Year. There are only four days until 2015 (!) and if I don’t pop on before then, I hope you all have a wonderful time, wherever and however you spend it.

Kisses!

 

the heavy.

TWITM_the heavy_sexyAisha smizing. She’s sexy and she knows it.

When Aisha was born, she was a wee thing of just over six pounds. In June, at her six-month checkup, the paediatrician informed me that she weighed 18 lb 9oz. She’d gone from being in the 20th percentile for both height and weight in her fourth month, to the 90th percentile for weight (and only 10th in height – womp, womp).

When I relaid the information to our home care nurse, her eyes widened and she said, “Oh, my! Babies are supposed to triple their birth weights by about one year of age…she’s already past that.”

I’m not entirely surprised. Last week I wrote about her healthy appetite. Her current love of all things edible means she’ll likely be a Chunky McButtons well into toddler-hood. Continue reading